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Hormone in Noonan syndrome by Kees Noordam The studies presented in this
thesis were funded by Pharmacia B.V., Woerden. and FBW Kindergeneeskunde
Nijmegen. - $25.00 (Book)
Syndrome A Parents Guide- Excellent booklet written in easy to understand
language, produced by The Noonan Syndrome Support Group, Inc.(1 Free with
each parent package) - Additional books $4.00 (Book)
Comprender El Síndrome De Noonan Guía Para Los Padres- Preparada Para El
Grupo De Ayuda Del Síndrome De Noonan (Noonan Sydrome Support Group, Inc.)
(1 Free with each parent package) - Additional books $4.00 (Book)
Many Faces of Noonan Syndrome Excellent booklet with photographs of people
of various ages affected by Noonan syndrome. Produced by The Noonan Syndrome
Support Group, Inc. -$4.00 (Book)
Noonan Connection- A cookbook of favorite recipes (over 250 pages) from the
families and friends of TNSSG, Inc. Produced by The Noonan Syndrome Support
Group, Inc. $10.00 (only
Noonan Support Group Pin - This pin is shaped like a heart and within the
heart is a box with the group’s logo. The pin is set on a gold background.
Characteristics Development, and Intervention - by Dr. Stephen von Tetzchner,
Center For Rare Disorders, The National Hospital, Norway: This book is a
comprehensive guide that covers the many aspects of Noonan syndrome. $20.00
Dr. Steve Band: Director, Division of Pediatric Psychology and
Neuropsychology, Mount Washington Pediatric Hospital One of the most common
questions he has been asked by parents is how they can promote healthy
self-esteem in their children with special needs. It is an important
question that remains relevant today.
Dr. Thomas Baumgardner: Clinical neuropsychologist. He
specializes in the assessment and treatment of children and adolescents with
behavioral, learning, emotional, and cognitive disabilities. He is part of a
multidisciplinary group of psychologists, psychiatrists, social workers, and
behavioral pediatricians located at Johns Hopkins at Greenspring Station.
CD:Dr. Bruce Gelb: The Arthur J. and Nelly Z. Cohen Professor of
Pediatrics Professor of Human Genetics. Director Cardiovascular Genetics
Program, Mt. Sinai School of Medicine, New York, NY.
Dr. Bryan Hall: Professor Emeritus Department of Pediatrics
Division of Genetics and Dysmorphology, University of Kentucky, Lexington,
KY. Special diagnostic interests: multiple congenital anomaly syndrome
identification and teaching thereof.
Dr. Dolores Njoku: Pediatric Anesthesiologists on Staff at Johns
Hopkins, Baltimore, MD. Research interests include the Immune effects of
Dr. Jacqueline Noonan: University of Kentucky Medical Center,
Lexington, KY. Professor of Pediatrics in the Division of Pediatric
Dr. Alicia Romano: Director of Pediatrics Endocrinology Our
Lady of Mercy Medical Center Bronx, NY.
Dr. Frank E. Schafer :Associate Professor of Pediatrics, MCP
Hahnemann University School of Medicine; Director General Hematology Clinic
and Bleeding Disorders Program, St. Christopher's Hospital for Children
Dr Judith Allanson: Clinical geneticist with a longstanding
interest in Noonan Syndrome. Her research focuses on the face: how it
changes with age; how we evaluate facial appearance; how important knowledge
of facial change is in the diagnosis of Noonan Syndrome.
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