TNSSG state/country representatives contact physicians in their area with publications, and possibly other means, describing the group and the fact that someone local is involved. They also may receive phone calls and letters regarding Noonan Syndrome, which may be handled directly or forwarded to our President, Wanda Robinson. By doing this we are increasing awareness about this syndrome. We probably all know affected people, physicians, friends, neighbors, or family who do not know what Noonan Syndrome is. Now there is something we can do to change that. Become a part of TNSSG State/Country representatives program. Give people the knowledge and support they need about NS!
We already have several volunteer state/country representatives for TNSSG. Our goal is to have at least three people per state/country. This is a big job and it is going to take time. However, what ever time you are able to give is time we would have otherwise.
Lacy Crouse is the coordinator for the US State Representative Program. Her email address is firstname.lastname@example.org. For other countries, contact Wanda at email@example.com.
An e-mail group is available to facilitate the exchange of information among State/Country Representatives. We are utilizing a free service hosted by eGroups.com. They have strict policies regarding privacy and do not tolerate unsolicited e-mail ("spam"). You may subscribe or unsubscribe at any time. To subscribe, please complete the following information.
The Noonan Syndrome Support Group, Inc. and any associated parties will not be held responsible for any actions readers take based on their interpretation of published or disseminated material. Please review medical treatment and decisions with your physician.