List Service Instructions

The following message is generated when someone joins the TNSSG list service.

Please save this message for future  reference, especially if this is the first time you are subscribing to an electronic mailing list. If you ever need to leave  the list, you will find the  necessary instructions below. Perhaps  more importantly,  saving a  copy of  this message  (and of  all future subscription notices  from other mailing lists) in a special mail folder will give you instant access to the list of mailing lists that you are subscribed  to. This may  prove very useful the  next time you  go on vacation and  need to leave  the lists temporarily so as not to  fill up your  mailbox while  you  are away!  You should  also  save the  "welcome messages" from the  list owners that you will  occasionally receive after subscribing to a new list.

To send  a message to  all the people  currently subscribed to  the list, just send mail  to NOONAN-SYNDROME@HOME.EASE.LSOFT.COM.  This is called "sending mail to the list," because you send mail to a single address and LISTSERV  makes copies  for  all  the people who have subscribed.  This address (NOONAN-SYNDROME@HOME.EASE.LSOFT.COM) is  also called  the "list address." You must never  try to send any command to  that address, as it would be distributed to all the  people who have subscribed. All commands must be sent to  the "LISTSERV address," LISTSERV@HOME.EASE.LSOFT.COM. It is very important to understand the difference between the two, but fortunately it is not complicated.  The LISTSERV address is like a FAX  number that connects you to a machine, whereas the list address is like a normal voice line connecting  you to a person. If you  make a mistake and dial the FAX number when you wanted  to talk to someone on the phone, you will quickly  realize that you used  the wrong number and  call again. No harm will have been done. If on the other hand you accidentally make your FAX call  someone's voice  line, the  person receiving the call will be  inconvenienced, especially if your FAX then re-dials every 5 minutes. The fact that  most people  will eventually  connect the  FAX machine  to the voice line to  allow the FAX to  go through and make the  calls stop does not mean  that you  should continue  to send FAXes  to the  voice number. People would just get mad at you.  It works pretty much the same way with mailing  lists, with  the difference  that  you are  calling hundreds  or thousands of people  at the same time, and consequently  you can expect a lot of people to get upset if  you consistently send commands to the list address.

You may leave the list at any time by sending a "SIGNOFF NOONAN-SYNDROME" command to LISTSERV@HOME.EASE.LSOFT.COM. You can also tell LISTSERV how you want it to  confirm the receipt of messages you send  to the list. If you do not  trust the system, send a "SET  NOONAN-SYNDROME REPRO" command and LISTSERV will send  you a copy of your own messages,  so that you can see that the message was distributed and  did not get damaged on the way. After a while  you may find that this is  getting annoying, especially if your mail program does not tell you  that the message is from you when it informs you that new mail has arrived from NOONAN-SYNDROME. If you send a "SET NOONAN-SYNDROME ACK NOREPRO" command, LISTSERV will mail you a short  acknowledgement  instead, which will look different in your mailbox directory. With most mail programs you will know immediately that this is an acknowledgement you can read later. Finally, you can turn off acknowledgements completely with "SET NOONAN-SYNDROME NOACK NOREPRO".

Contributions sent to this list are automatically archived. You can get a list of the available archive files by sending an "INDEX NOONAN-SYNDROME" command to  LISTSERV@HOME.EASE.LSOFT.COM. You can then  order these files with a "GET  NOONAN-SYNDROME  LOGxxxx"  command,  or  using  LISTSERV's database  search facilities.  Send an  "INFO DATABASE"  command for  more information on the latter.

This list is available in digest form.  If you wish to receive the digested version of the postings, just issue a SET NOONAN-SYNDROME DIGEST command.

Please note that  it is presently possible for other  people to determine that  you are  signed up  to the  list through  the use  of the  "REVIEW" command,  which  returns   the  e-mail  address  and  name   of  all  the subscribers. If  you do not  want your name to  be visible, just  issue a  "SET NOONAN-SYNDROME CONCEAL" command.

More  information on  LISTSERV  commands  can be  found  in the  LISTSERV reference  card, which  you can  retrieve  by sending  an "INFO  REFCARD" command to LISTSERV@HOME.EASE.LSOFT.COM.  


The Noonan Syndrome Support Group, Inc. and any associated parties will not be held responsible for any actions readers take based on their interpretation of published or disseminated material. Please review medical treatment and decisions with your physician.