Welcome FAQ Family Support Communications Information & Resources Services Available News Desk

Some of these links discuss features that are associated with Noonan Syndrome. This does not mean that all features are seen in all persons with the disorder. Some with Noonan Syndrome may have only a few of these features and some may have many. There are also differences in terms of the severity of each of these features. Some of the information herein may only be covering the "tip of the iceberg" - those cases with features severe enough to require medical attention.

Bienvenue dans la communaut Noonan France! (Ermanno's site)
Florida State Representative (Pamela's site)
Founder for TNSSG (Wanda's site)
Martha Kate Downey site
Planet Hope - Clickable map of TNSSG
Rinke's Page
TNSSG Prayer List
Virginia State Representative (Sue'e site)

NS General Information:
Aspects of Noonan Syndrome by Dr. Graham
Glossary of Medical Terms & Phrases Relating to Noonan Syndrome Language Disorders in Noonan Syndrome
Noonan Syndrome Factsheet by Dr. Allanson
PEDBASE article
Possible Anomolies

Information on Possible NS Features:
Bacterial Endocarditis Short Stature

Other NS Support Groups:
German Support Group - Noonan Child
NVGG is the Dutch support group for people with Growth Hormone Deficiency, Turner Syndrome and Noonan Syndrome

Inspirational Ideas:
A Parent's Journey

Insurance Issues:
Insurance Stratgies

Gift of Life

Other Organizations:
Asperger's Syndrome Information
British Society For Paediatric Endocrinology and Diabetes
Children and Adults with Attention Deficit Syndrome
Friends' Health Connection
Gastroesophageal Reflux Association
Human Growth Foundation
Learning Disabilities Association
Magic Foundation
NORD - National Organization for Rare Disorders
Pediatric Endocrinology Nursing Society
Wide Smiles: Cleft Lip and Palate Resource
World Association of Persons with Disabilities

Other Resources:
Assistive Technology
Bridging the Parent-Professional Gap Site and Survey
Child & Adolescent Psychiatry
Cardiac Kids Congenital Heart Disease Information and Resources
Congenital Heart Disease Resource Page
Disabilities Information Resources
disability Information and Resources
Ear Infections
Family Village
Friends' Health Connection
Gastronomy Support
Hematology Resources
Mental Health Infosource
MGH Neurological Support Non-verbal Learning Disorder
Our Kids Web Site
Parenting Resources
Patient Advocacy Numbers
Points of Pediatric Interests]
Project Choices Inclusion Resources
Psychiatry On-line
Self-Help Sourcebook OnLine]
Sign Language
Special Hearts Online
Special Needs Education Network
Special Needs in England from BBC
The Purine Research Society (Autism)
The Resource Room
The Special Ed Advocate
Tomatis® Method (listening therapy)
Von Willebrand's Disease info
WebABLE! - "First-Stop-Shop" for People with Disabilities

Medical Encyclopedias & Databases:
AMA Health Insight
AMI Encyclopedia HealthGate
Health Net
Internet Mental Health
InteliHealth from John Hopkins]
List and Glossary of medical terms] [Med Help International]
Medscape (includes Medline)
Mental Health Net]
Pediatric Database (PEDBASE)
The Health Explorer

Internet Mental Health
Medscape Rx Database Pharmaceutical Information Network]
Pschopharmacology Tips


Genome Database
Medline Query
PubMed Language Based Learning Disability:Remediation Research

Educational Issues:
College Planning for Students with Learning Disabilities
Effective Practices for Preparing Young Children with Disabilities for School
Including Students with Disabilities in General Education Classrooms
Integrating Students with Severe Disabilities
LD in Depth:IEP Preparing Children with Disabilities for School]
Special Educational Rights and Wrongs

US Government Agencies:
Center for Disease Control
Combined Health Information Database
Department of Health and Human Services
Department of Justice
Federal Drug Administration
National Library of Medicine (includes free Medline use)
Social Security Online
State Title V CSHCN Programs

Around the World:
Special Needs Information (UK)

Commercial Sites:
Different Roads to Learning
Exceptional Parent
Inclusion Press
Scandipharm products and services

University Sites:
Department of Special Education at The University of Kansas
Harvard Medical - the Whole Brain Atlas
UC Berkeley's School Psychology Program]
University of Bufffalo Cornucopia of Disability Information]

Developmental Care Facilities:
Alphabet House

This site has been identified as a USA Online Honor Site:
USA Online

Contact Us: Submissions for new links or documents are appreciated. To contact us, click here.

This page and linked sites is to be used for informational purposes only. Any of the information herein may not be complete or accurate and should NOT be used as a substitute for seeking professional medical diagnosis, treatment and care.

The Noonan Syndrome Support Group, Inc. and any associated parties will not be held responsible for any actions readers take based on their interpretation of published or disseminated material. Please review medical treatment and decisions with your physician.